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We Need Your help as a 50 State Network Advocate!
Now is your time to be heard
Seth’s 50 State Network is a grassroots advocacy organization comprised of patients like you. We are working to share the patient perspective, which is crucial in the State and Federal health policy and regulatory arenas. Patients need a voice in all conversations that relate to our access to treatment, safety, or the quality of our care.

This community is made up of patients living with diverse chronic illnesses, including rheumatoid arthritis, lupus, and psoriasis, and the people who care about them. Seth’s 50 State Network is about transforming pain into purpose, empowering those that may feel victimized by disease. Our focus is on repurposing the energy of frustration, despair, and helplessness into positive mobilization, action, and fair representation to benefit all of us.

Our formula, which we offer to our fellow patients and their loved ones, is to take lemons and make lemonade.

Join Seth’s 50 State Network here.
Victories
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Victory in Washington

Washington is the fourth state this year to pass a bill that notifies physicians when there patients’ medication has been substituted.

In Action
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GHLF Comment Letter for Support for Louisiana HB319

Attached please find a comment letter concerning House Bill 319 which addresses the substitution of biologics and interchangeable biosimilars. We kindly request that you support this bill. We believe that HB 319 …

In Action
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Watch Steve from GHLF and Kat Macfarlane, patient advocate, speak about biosimilar substitution and transparency

For patients with chronic diseases, medication can be very costly and there’s no guarantee it’ll work.