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We Need Your help as a 50 State Network Advocate!
Now is your time to be heard
Seth’s 50 State Network is a grassroots advocacy organization comprised of patients like you. We are working to share the patient perspective, which is crucial in the State and Federal health policy and regulatory arenas. Patients need a voice in all conversations that relate to our access to treatment, safety, or the quality of our care.

This community is made up of patients living with diverse chronic illnesses, including rheumatoid arthritis, lupus, and psoriasis, and the people who care about them. Seth’s 50 State Network is about transforming pain into purpose, empowering those that may feel victimized by disease. Our focus is on repurposing the energy of frustration, despair, and helplessness into positive mobilization, action, and fair representation to benefit all of us.

Our formula, which we offer to our fellow patients and their loved ones, is to take lemons and make lemonade.

Join Seth’s 50 State Network here.
In Action
GHLF-50 State FDA Naming
GHLF Asks Patients: “How Does It Feel to be Switched?”

GHLF released the findings of a national survey of stabilized patients that explored their perspectives on switching prescribed biological medicines. The survey, “Patient Perspectives on Medication Switching for Non- Medical Reasons,” found 98 percent of the 177 eligible respondents said insurance companies and pharmacists should not switch effective therapies without patient and physician notification.

Victories
GHLF-50 State FDA Naming
Letter to FDA on naming

The clock starts ticking as soon as a patient experiences symptoms of an adverse reaction. When the worst happens, we want our healthcare team to have the maximum information available to them in order to find the cause quickly and accurately. That is why the Global Healthy Living Foundation (GHLF) and its members fully support the FDA’s decision to incorporate a distinguishable name for the first approved biosimilar – filgrasim-sndz. There has been a lot of debate about […]

Victories
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Victory in Colorado

Our second advocacy victory of the year! CreakyJoints Patient Advocate Mariah recently shared her story before Colorado government and humanized an important patient safety concern. Because of her testimony, patients and their physicians must be notified when their biologic or interchangeable biosimilar has been substituted. This victory increases transparency and patient safety. Her voice made […]