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We Need Your help as a 50 State Network Advocate!
Now is your time to be heard
Seth’s 50 State Network is a grassroots advocacy organization comprised of patients like you. We are working to share the patient perspective, which is crucial in the State and Federal health policy and regulatory arenas. Patients need a voice in all conversations that relate to our access to treatment, safety, or the quality of our care.

This community is made up of patients living with diverse chronic illnesses, including rheumatoid arthritis, lupus, and psoriasis, and the people who care about them. Seth’s 50 State Network is about transforming pain into purpose, empowering those that may feel victimized by disease. Our focus is on repurposing the energy of frustration, despair, and helplessness into positive mobilization, action, and fair representation to benefit all of us.

Our formula, which we offer to our fellow patients and their loved ones, is to take lemons and make lemonade.

Join Seth’s 50 State Network here.
In Action
Steve M Medication Transparency Bill Passes Committee
Medication Transparency Bill Passes Committee

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In Action
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More States Demand Notification to Use Biosimilar Drugs

Without the medicine Rachelle Crow takes for her rheumatoid arthritis, the 29-year-old Michigan woman’s face would frequently feel as if it were engulfed in flames. She would barely be able to crawl out of bed. She would have trouble opening or closing her fists or lifting her 3-year-old daughter. Crow can do all those things […]

In Action
AdvocateJulie
Houston Chronicle – Soaring specialty drug prices leave patients seeking relief

Julie Wiles of Spring says she found relief from rheumatoid arthritis when she began receiving injections of Enbrel, a drug that costs $2,500 a week. But even with insurance coverage, Wiles can no longer afford Enbrel. Instead, she takes a combination of less expensive drugs and injections that hasn’t been nearly as effective.   Read […]