Assemblywoman Jaffee provided our listeners with some important advice about the power of the patient perspective. Listen to what she had to say:
If you ask patients with severe chronic diseases, such as those with rheumatoid arthritis, cancer, or multiple sclerosis, what they believe is the most important factor in achieving a positive outcome for their condition or disease, the vast majority will say it’s the relationship they have with their physician and treatment team.
When Lauren Marchi entered college as a freshman at American University in Washington, DC, she was a classically trained pianist and ballerina. She had aspirations of pursuing degrees in piano performance and marketing while dancing on the side, but early in her senior year she was forced to question her well-laid plans.
On July 13th, the Global Healthy Living Foundation, working with the Coalition of State Rheumatology Organizations and the Arthritis Foundation, in cooperation with the Congressional Arthritis Caucus, co-hosted a congressional briefing on “Biosimilars for Arthritis Patients: Challenges and Opportunities.”
Dr. Neal Raisman, a GHLF advocate who lost his son Isaac to meningitis in 2005, provided testimony before the ACIP, urging the Committee to approve the meningitis B vaccine for routine clinical use.