Join the 50-State Network
Joining the 50-State Network is free and simple. You’re invited to join if you want to help make a difference in the way patients and their families access care. Membership is free, and your participation is voluntary. After you complete the form below, you will receive a welcome packet and a member of our team will contact you to answer questions and discuss next steps.
Joining the 50-State Network can be a life changing experience. Don’t take our word for it, hear from our advocates themselves:
Kat on the importance of the patient perspective:
“It is so important to have the patient voice, and stand back and think that a panel about a medication that all of us may take or that may impact us, and if there’s only one patient on the panel or one patient voice in the whole experience, it brings it down to earth, it reminds people what this is all about.”
Kat on sharing her story with legislators:
“As a patient, we don’t, I don’t know the science… but I do know my symptoms and I do know what my disease has been like for me, and so once I was focusing in on that and my story, I felt pretty comfortable.”
Mickey on the need to speak up and increase access to opioid-induced constipation medication:
“That’s a subject that nobody would like to talk about… but it’s a very critical thing that does happen to us. And we do need the medication, and we do hope and pray that it does get approved by the committee.”
Thank you for your interest in joining!