Unlike traditional chemical drugs, biologics have unique, complex structures made from living cells that are not easily understood or replicated. A small change or difference in the biosimilar or biologic has the potential to either help or adversely affect patients like me.
I am writing to you today on behalf of the more than 80,000 members nationwide of
CreakyJoints.org, a part of the Global Healthy Living Foundation, to express our support
The Global Healthy Living Foundation (GHLF) is a 501 (c)(3) patient group that works to improve the quality of life for people with chronic disease, often focusing on those least able to advocate for themselves.
The clock starts ticking as soon as a patient experiences symptoms of an adverse reaction. When the worst happens, we want our healthcare team to have the maximum information available to them in order to find the cause quickly and accurately. That is why the Global Healthy Living Foundation (GHLF) and its members fully support the FDA’s decision to incorporate a distinguishable name for the first approved biosimilar – filgrasim-sndz. There has been a lot of debate about […]
TESTIMONY – STATE BIOSIMILAR SUBSTITUTION North Carolina House of Representatives Health Committee House Health Committee consideration of HB 195 Speaker: Regan Reynolds Patient Advocate Global Healthy Living Foundation April 1, 2015 Disclosure: I have no disclosures to make regarding my travel here today. The Global Healthy Living Foundation accepts grants and charitable contributions from pharmaceutical […]
TESTIMONY – STATE BIOSIMILAR SUBSTITUTION Texas State Senate Public Health Committee Health & Human Services Committee Consideration of SB 542 Cindy Brannum Patient Advocate Global Healthy Living Foundation April 1, 2015 Disclosure: I have no disclosures to make regarding my travel here today. The Global Healthy Living Foundation accepts grants and charitable contributions from pharmaceutical companies, […]
TESTIMONY – STATE BIOSIMILAR SUBSTITUTION Washington State House of Representatives Health Care & Wellness Committee House Health Care & Wellness Committee consideration of SB 5935 Speaker: Lisa Powell Patient Advocate Global Healthy Living Foundation March 24, 2015 Disclosure: I have no disclosures to make regarding my travel here today. The Global Healthy Living Foundation accepts grants […]
TESTIMONY – STATE BIOSIMILAR SUBSTITUTION Oregon House of Representatives Committee on Health Care Committee on Health Care consideration of HB 2026 Speaker: Anna Marie Meyer Patient Advocate Global Healthy Living Foundation March 16, 2015 Disclosure: I have no disclosures to make regarding my travel here today. The Global Healthy Living Foundation accepts grants and charitable contributions […]
Victory! CDC’s Advisory Committee for Immunization Practices (ACIP) voted unanimously to recommend the Meningitis B vaccine for at risk populations. In June, the panel will evaluate broader recommendation for college students. Seth had the honor of reading the comments prepared by Neal Raisman, who unfortunately had to return home to Columbus, and was not able […]
Listen to Representative Dee (bill sponsor) highlight the power and importance of the patient perspective in his final comments here Click Here to listen to the interview on Healthy Biologics Transcript: “I did not ask for, nor did I know, that the witness Tabatha Yager would be here today. But I […]